Tuesday, June 23, 2009

IV Therapy Blues

People,
I have been positive for over three weeks and now I believe it is the time to vent. The way this Intravenous therapy disrupts my sleep is going to drive me crazy. Not to mention that I am trying to go back to work so that I can have a normal life. If anybody out there knows what I am going through and would be willing to talk I would greatly appreciate it. I would love to chat with someone who has been through this. I have lots of questions. Does anybody else get a prickly feeling when they infuse? Hit me back.
Seth

7 comments:

  1. OK so I am a little cooler now. I have gone back to work part time and that seems to help. I infuse 3 times a day 9am 5pm and 1am. The 1 am one is the difficult one. In order to get some sleep I take 2 Tylenol Simply Sleeps at 8:15pm then a Hydrocodone at 1am to ease me through the infusion. At 1am I listen to music by Max Richter to also help calm me down. When the infusion is over around 2:15am I go to sleep till the alarm rings at 6am. Thats when its time to take the bag of Vancomycin out of the fridge for the 9am infusion. I get up at 8am take a shower by way of a shower chair, make a bagel and coffee, then start my 9am infusion. While infusing I make my lunch for work (and type in my blog)then I try to leave for work to arrive at 11:30 am and work till 4pm. Then I come home and do my 5pm infusion.

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  2. OK today is Friday and Sat. will mark the end of the 4th week of my IV therapy. Hopefully that means only two more weeks. Man will I be glad when this is over. The therapy really interrupts my sleep pattern. I can't wait to sleep normally again. I'm grateful too. I know this could be a lot worse. My problems will be better but some folks have it a lot worse. On one hand the therapy gets to me but on the other i am glad its there so I can get better. Just two more weeks.

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  3. Today is Sunday the June 28th. I started the IV infusion therapy Saturday May 30th. Monday June 22nd I went to 3 infusions a day 1 every 8 hours. Its extremely tough. The inability to sleep at night is unbearable. This morning around 12:30am I started screaming and throwing pillows across the room. I feel that I am starting to become unglued. Not being able to sleep is torture. I can't sleep in the day either. Its like I feel extremely tired but I cannot sleep and it makes me want to crawl out of my skin.Tomorrow morning I am going to talk to the infectious disease office and tell them about the sleep problem. Additionally I am showing signs of Red Man Syndrome. I do not think it is because I am taking the medicine too fast, I think it is because I am taking it too often. I will report back after I talk to the Dr. office.

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  4. So I talked to the infectious disease office and they said my Vancomycin level was high so they decreased the dose but not the frquency. I am really showing all the symptoms of Red Man Syndrome. Its like hives. My hands and feet itch like crazy. I am taking Benedryl, hopefully that will help but I don't know if it is. I am so ready for this to be over. Only 10 more days until this madness is over and I start to be myself again. OK thats all for now.

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  5. Its over on Tuesday July 14th. They will take out my picc line. Yes I am looking forward to that. They gave me a steroid for my hives and they went away but now my skin is pealing like a sun burn. I am just glad that this madness is almost over. Thank God!

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